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AI Use Disclaimer

Last updated: 2026-05-26

Forgotten Rare uses AI to help families organize information, draft messages, prepare for appointments, and find gentle words for hard moments.

What AI is good for here

  • Explaining medical or insurance terms in plainer language.
  • Drafting family updates, appointment questions, and handoff notes.
  • Offering emotional support prompts and comfort scripts.

What AI is not

  • Not a doctor, attorney, insurance agent, or social worker.
  • Not a source of personalized medical, legal, or financial advice.
  • Not always accurate - output can be incomplete or wrong.

Every AI response in Forgotten Rare should be reviewed for accuracy and confirmed with the appropriate professional before acting on it. Prompts you send may be processed by our AI provider to generate a response.

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Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.

© 2026 Forgotten Rare · In honor of Augyst

A portion of profits supports rare disease families.