You can delete your Forgotten Rare account and personal data at any time. There are two ways to do this.
1. Delete from inside your account (recommended)
Sign in and go to your account page. Under Data & privacy you'll find Export my data and Delete my account. Deletion removes your profile, child records, appointments, notes, symptoms, journal entries, and uploaded documents linked to your account.
2. Email request
If you can't sign in, email privacy@forgottenrare.com from your account address with the subject "Data deletion request". We will confirm and remove your data within 30 days.
What we keep
- Billing records required by tax and payment-processor regulations (typically 7 years).
- Aggregated, de-identified usage statistics that cannot be tied back to you.
- Records we are legally required to retain (e.g., fraud investigations).
Before you delete
Consider exporting a copy of your data first - especially binder entries, family history, and medical-story drafts. Deletion is permanent and cannot be reversed.