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Forgotten Rare is now free forever.

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Mission

Giveback - in honor of Augyst

Last updated: 2026-05-26

Forgotten Rare

Forgotten Rare is free forever for every family. Donations to our mission support rare disease families, advocacy, and the future development of this platform in honor of Augyst.

What giveback may support

  • Rare disease family support, including care packages and hospital comfort items.
  • Hospital support efforts for families with medically complex children.
  • Advocacy initiatives and rare disease organizations.

How updates will be shared

As the giveback program grows, we will share updates on what was supported. Specific percentages and partners will be published here as the program is formalized.

What giveback is not

Giveback contributions through Forgotten Rare are not charitable donations to a registered nonprofit and do not constitute tax-deductible giving. Please consult a tax professional for charitable giving guidance, and your medical team for any care decisions.

Questions or partnership ideas: hello@forgottenrare.com.

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Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.

© 2026 Forgotten Rare · In honor of Augyst

A portion of profits supports rare disease families.