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Forgotten Rare
Legal

Terms of Use

Last updated: 2026-05-26

Welcome to Forgotten Rare. By creating an account or using the platform, you agree to these terms.

What Forgotten Rare is

Forgotten Rare is an emotional support and organization companion for families navigating rare disease and complex care. It is not a medical, legal, insurance, financial, or emergency service, and is not HIPAA compliant.

Your account

You are responsible for keeping your login credentials safe and for the information you store in the platform. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment.

Acceptable use

  • Do not use Forgotten Rare to harass, harm, or impersonate others.
  • Do not upload content that violates someone else's rights or privacy.
  • Do not attempt to break, reverse engineer, or interfere with the platform's security.

AI features

Forgotten Rare uses AI to generate educational and emotional support content. Output may be inaccurate or incomplete. Always confirm any AI guidance with the appropriate professional before acting on it.

Subscriptions and payments

Premium memberships are billed through our payment provider. You can cancel at any time from the billing portal; refunds are handled on a case-by-case basis. A portion of proceeds supports rare disease families in honor of Augyst.

Termination

We may suspend or terminate accounts that violate these terms. You may delete your account at any time from your account page.

Disclaimers and liability

Forgotten Rare is provided "as is" without warranties of any kind. To the maximum extent permitted by law, Forgotten Rare and its team are not liable for any indirect, incidental, or consequential damages arising from your use of the platform.

Contact

Questions about these terms: hello@forgottenrare.com.