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Real people, real help

A short, hand-picked list of free helplines, support groups, and navigators. No sales pitches, no email captures - just the phone number or page you actually need.

  • Alzheimer's Association 24/7 Helpline

    Dementia / Alzheimer'sAging parentCaregiver wellbeing

    Free helpline staffed around the clock

    Crisis support, decision help, local resources for dementia caregivers.

  • Eldercare Locator

    Aging parentCaregiver wellbeingFinancial / benefits

    Federal service that connects you to local Area Agencies on Aging

    Find respite, meals, transport, and benefits counseling near the person you care for.

  • Family Caregiver Alliance

    Caregiver wellbeingAging parentDementia / Alzheimer's

    Caregiver support, education, and state-by-state resources

    Practical guides and a navigator that maps services for unpaid caregivers.

  • NORD - National Organization for Rare Disorders

    Rare diseasePediatric / parentFinancial / benefits

    Patient assistance, disease database, advocacy

    Financial assistance programs and connections to disease-specific orgs for rare conditions.

  • Global Genes

    Rare diseasePediatric / parentCaregiver wellbeing

    Rare disease community + toolkits

    Caregiver toolkits, parent meet-ups, and condition-specific advocacy networks.

  • Parent to Parent USA

    Pediatric / parentRare diseaseCaregiver wellbeing

    1:1 matched support from another rare/special-needs parent

    Someone who's already walked the road you just started.

  • 988 Suicide & Crisis Lifeline

    Mental healthCaregiver wellbeing

    Free, confidential mental health crisis support

    For you, for the person you care for. Call or text 988.

  • NAMI Helpline

    Mental healthCaregiver wellbeing

    Mental health information and local affiliate connections

    Navigating a new diagnosis, finding a therapist, family support groups.

  • BenefitsCheckUp (NCOA)

    Financial / benefitsAging parent

    Free screening for 2,500+ benefit programs

    Surface Medicare savings, SNAP, LIHEAP, prescription help - often missed money.

  • Patient Advocate Foundation

    Financial / benefitsCaregiver wellbeing

    Free case management for insurance and medical debt issues

    A real human helping you with denials, appeals, and copay assistance.

  • CaringInfo (NHPCO)

    End-of-life planningAging parent

    State-by-state advance directive forms, free

    Download the right form for your state - no lawyer needed for the basic version.

  • Compassion & Choices

    End-of-life planningAging parent

    End-of-life planning support and advocacy

    Tools for hard conversations, hospice navigation, and dignity-focused decisions.

  • ARCH National Respite Network

    Caregiver wellbeingAging parentPediatric / parent

    Locator for respite care providers in your state

    Even a few hours off matters. This finds providers near you.

  • Well Spouse Association

    Caregiver wellbeingMental health

    Peer support for spouses of the chronically ill / disabled

    Specifically for partners - a lonelier role than people realize.

We don't take money from anyone on this list. If a number or page changes, tell us and we'll fix it within a day.

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Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.

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© 2026 Forgotten Rare · In honor of Augyst

A portion of profits supports rare disease families.