Genetic testing
Every panel, every WES/WGS, every targeted test. Lab, result, variant, gene - so genetics doesn't re-order what you already have.
Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
Genetics + rare disease resources
Family networks, registries, and educational organizations from our shared library.