When people ask how they can help
Helper requests
Meals on Thursday. Ride to dialysis. Two hours of sitting so you can shower. Mow the lawn. Write down what you actually need this week - and tick who's claimed each one. Most people want to help and just don't know how.
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Forgotten Rare provides educational, organizational, and emotional support—not medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. It is not a HIPAA-covered medical records system.
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