Safety

Wandering & elopement log

A calm record of every time they left unattended. Patterns here - time of day, recent triggers, how long - help you talk to the neurologist and adjust the home.

Educational support and privacy information Learn more

Forgotten Rare provides educational, organizational, and emotional support—not medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. It is not a HIPAA-covered medical records system.

Privacy & Safety