Family Connection
The people who love you want to help - but you don't have to retell the story ten times. Curate your circle, choose how often you check in, and we'll help you write.
Your circle
Who do you want to stay close to? Add them once. We'll remember.
No one yet. Start with one person who has been asking.
Tell us who it's for and what's going on. We'll match the tone.
AI-generated support. Educational only. Please review for accuracy and confirm with the appropriate professional.
Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
You can also send one batched update from the Family Update Generator - a single message you copy and paste to everyone in your circle.