Hospital Survival Mode

For the long admissions. Packing, room setup, things to do, and parent survival - all in one place.

Packing list

Parent clothes (3 days)Chargers & long cableComfort blanket / pillowToiletries & dry shampooYour medsChild's lovey / favorite toyDocuments folderEasy snacksHeadphonesReusable water bottleLaundry bag

Room setup

Command-center wall: meds list + question listComfort lighting (string lights ok)Toy / activity corner for siblingsParent rest zoneWipes + sanitizer in easy reach

Things to do in the hospital

Sticker decoratingWindow-watching scavenger huntTablet movies with headphonesPillow forts on the bedHospital birthday: balloons + room decorSibling video callsTiny garden: paper flowers

Parent survival

Shower whenever a nurse offers to sitSleep when the baby sleeps - same rulePack protein snacks for 3 AMStep outside for 5 minutes a dayAsk the nurse: 'what's our plan today?'

Nearby break finder

Enter your hospital and we'll surface coffee, food, parks, pharmacies, quiet places, and the nearest Ronald McDonald House.

Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.

A portion of profits supports rare disease families.

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