A new diagnosis
You just got a diagnosis (or a strong suspicion of one).
You don't have to do all of this today. Breathe. Pick one. Come back tomorrow. The order below is what most families wish they'd done first - but there is no wrong way to walk this.
- 01
Save the words
Add the diagnosis to your Problem List with ICD-10 if you have it. Future you will thank present you.
Open Diagnoses - 02
Translate the letter
Paste the after-visit summary or report into the Medical Explainer for plain-English context.
Open Explainer - 03
Write your child's story (draft)
Even a rough version of the Medical Story will save you from re-explaining to every new doctor.
Generate Story - 04
Name your team
Add the diagnosing doctor and any specialists involved so far. You'll add more later.
Add providers - 05
Start a symptom log
Log what you've been seeing. Patterns are easier to spot in writing than in your head.
Open Tracker - 06
Check insurance coverage
Find out what's covered, what needs prior authorization, and who to call. The Coverage Center walks you through it.
Open Coverage Center - 07
Tell one person
Pick one trusted person and tell them out loud. The Family Update Generator can help if words are hard.
Draft an update - 08
Find your community
Other families have walked this. The Support Navigator helps you find disease-specific groups.
Find groups - 09
Watch for clinical trials (optional)
Add this diagnosis to your Trials Watchlist so you'll see what's available when you're ready to look.
Open Watchlist