Welcome

Let's adapt this to your situation.

Forgotten Rare started as a rare disease parent app and has grown into a calm, organized home for anyone navigating complex care. Tell us who you care for and we'll shape the language, the tools, and the support around you.

You are not alone here.

Whatever your situation - a medically complex child, your own chronic illness, an aging parent, a partner navigating a hard diagnosis, or all of it at once - this is a quiet, organized place built for you.

• You can change every answer later.
• You can add more than one person you care for.
• Nothing is shared with anyone unless you invite them.

Already set up? Go to your care recipients.