Emergency Family Support Hub
Help when your family is in crisis: long admissions, sudden income loss, urgent bills. We help you triage the most urgent needs first.
Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
Emergency Planning Assistant
Tell me what's happening right now and what's most urgent. I'll help you build a triage list and a one-week plan.
Resource directory
Browse, search, and bookmark to your account.
Emergency financial assistance
Housing & utility relief
Preparation checklist
A gentle starting list. You don't need everything to begin.
- Most urgent bill and due date
- Admission dates / hardship letter
- Last pay stub or income loss documentation
- List of bills with amounts and dates
- Hospital social worker contact
Common questions to ask
- • What should I ask?
- • What documents may I need?
- • How do I prepare?
- • What usually happens next?
- • How do I organize this?
- • How do I ask for help?