Financial Help Hub
Browse internal resource hubs for each category. Each hub educates, organizes, and offers AI-guided support before sending you anywhere else.
Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
Rare disease foundations
Diagnosis-specific grants and family aid.
Travel assistance
Flights, mileage, lodging near specialty hospitals.
Gas cards & meal support
Daily-life support during long admissions and crises.
Lodging support
Ronald McDonald House and hospital hospitality programs.
Therapy funding
Foundations covering OT, PT, speech, feeding, AAC.
Medical equipment
DME, strollers, AAC, adaptive seating, sensory equipment.
Emergency family grants
Rent, utility, and crisis support during long admissions.
Sibling support
Camps, groups, and emotional resources for brothers and sisters.
Bereavement resources
Gentle support if your family is facing loss.