Financial Help Hub
Browse internal resource hubs for each category. Each hub educates, organizes, and offers AI-guided support before sending you anywhere else.
Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
Bookmark anything you want to return to - it lands in your application tracker.
Open your saved applications →Rare disease foundations
Diagnosis-specific grants and family aid.
Travel assistance
Flights, mileage, lodging near specialty hospitals.
Gas cards & meal support
Daily-life support during long admissions and crises.
Lodging support
Ronald McDonald House and hospital hospitality programs.
Therapy funding
Foundations covering OT, PT, speech, feeding, AAC.
Medical equipment
DME, strollers, AAC, adaptive seating, sensory equipment.
Emergency family grants
Rent, utility, and crisis support during long admissions.
Family support
Groups, scripts, and emotional resources for the family around someone who is sick.
Bereavement resources
Gentle support if your family is facing loss.
Looking for something specific?
Browse our curated resource library of foundations, grants, waivers, and advocacy organizations, or search across the whole platform.
Foundations + grants in our library
Curated, vetted sources we trust. Open the full library for more.