Forgotten Rare
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Resource Hub

Therapy Support Funding Hub

Funding paths for OT, PT, speech, feeding, and AAC therapy when insurance gaps create out-of-pocket costs. We help you frame your need clearly.

Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.

Therapy Question Generator

Tell me what therapy you need and any insurance gaps. I'll draft questions for the therapist, the insurer, and any grant applications you're considering.

Resource directory

Browse, search, and bookmark to your account.

Therapy & equipment grants

Small Steps in Speech

Speech therapy grants for children.

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Scottish Rite RiteCare

Free or low-cost speech and language services in many states.

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AAC Funding Help

Education and resources for AAC device funding.

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Medicaid waiver education

Katie Beckett / TEFRA waivers

State waiver options that may cover therapy.

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The Arc

Local chapters help navigate disability services and waivers.

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Preparation checklist

A gentle starting list. You don't need everything to begin.

  1. Therapy evaluation and goals
  2. Letter of medical necessity
  3. Denial letter from insurance (if applicable)
  4. Itemized cost estimate
  5. Plan of care from provider

Common questions to ask

  • What should I ask?
  • What documents may I need?
  • How do I prepare?
  • What usually happens next?
  • How do I organize this?
  • How do I ask for help?