Travel Assistance Hub
Medical travel resources for families heading to specialty appointments, surgeries, or long admissions. We'll help you plan what to pack, how to transport medications, and how to ask for travel support.
Educational support and privacy information Learn more
Forgotten Rare provides educational, organizational, and emotional support—not medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. It is not a HIPAA-covered medical records system.
Privacy & SafetyTravel Planning Assistant
Tell me your trip details (where you're going, why, with which equipment) and I'll help organize packing, medication transport, TSA considerations, and lodging questions.
Resource directory
Browse, search, and bookmark to your account.
Medical flights & ground transport
Angel Flight networks
Volunteer pilots providing free non-emergency medical air transport.
Visit resourceLodging while away from home
Mileage, gas & parking
Preparation checklist
A gentle starting list. You don't need everything to begin.
- Appointment dates and physician contact info
- Distance and travel mode
- Medication list with refrigeration needs
- Equipment list (feeding pump, oxygen, AAC device, etc.)
- Insurance card and out-of-network letter, if applicable
- Lodging confirmation or waitlist
Common questions to ask
- • What should I ask?
- • What documents may I need?
- • How do I prepare?
- • What usually happens next?
- • How do I organize this?
- • How do I ask for help?
More from the curated library
A few additional foundations, grants, and aid orgs worth knowing about.