Family Support Center
Partners, adult children, siblings, parents, and close friends carry a lot too. These resources help them feel seen, supported, and connected to peers who understand.
Forgotten Rare provides educational, organizational, and emotional support only and does not provide medical, legal, insurance, financial, mental health, genetic counseling, or emergency advice. Always consult qualified professionals regarding your specific situation.
Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.
Family Conversation Helper
Tell me who the family member is (spouse, adult child, sibling, parent, friend) and what's happening. I'll help you find gentle, fitting words and ideas to support them.
Resource directory
Browse, search, and bookmark to your account.
Family programs & groups
Sibling Support Project (Sibshops)
Workshops and online groups for siblings of any age.
Visit resourceCaregiver Action Network
Peer support for spouses, adult children, and family caregivers.
Visit resourceWell Spouse Association
Support for partners caring for a chronically ill or disabled spouse.
Visit resourceEmotional support across ages
Preparation checklist
A gentle starting list. You don't need everything to begin.
- Their relationship to the person who is sick
- What they currently know
- What feelings they've expressed (or avoided)
- Support people in their life (work, school, faith, counselor)
Common questions to ask
- • What should I ask?
- • What documents may I need?
- • How do I prepare?
- • What usually happens next?
- • How do I organize this?
- • How do I ask for help?
More from the curated library
A few additional foundations, grants, and aid orgs worth knowing about.