Forgotten Rare
Tool

Insurance Navigator

Translate denial letters, understand insurance jargon, and stay organized through appeals. Educational only - not insurance or legal advice.

Translate a denial letter

Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.

Insurance term glossary

Prior authorization

Insurance must approve before paying for a service.

Denial

Insurance has declined to pay. You usually have appeal rights.

Appeal

A formal request to reverse a denial.

EOB

Explanation of Benefits - what insurance paid and what you owe.

Deductible

What you pay before insurance starts covering costs.

Out-of-pocket max

The most you'll pay in a year before insurance covers 100%.

In/out of network

Whether a provider has a contract with your insurance.

Medical necessity

Insurance's standard for whether a service is required.

Formulary

The list of medications your plan covers.

DME

Durable Medical Equipment - wheelchairs, feeding pumps, etc.

Coordination of benefits

How two insurances work together.

Prior auth & call log (coming soon)

Track requests, statuses, reference numbers, deadlines, and every conversation in one place.

Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.