Membership & Giveback

Support, organization, and emotional guidance for families navigating the unimaginable.

You are carrying enough already. Forgotten Rare was designed to help lighten the load - built from lived experience, never to profit from sick children.

A portion of every membership gives back

In honor of Augyst, a portion of proceeds supports rare disease families, hospital support efforts, care packages, and advocacy initiatives.

You are not alone

Free

Real support for every family - regardless of financial situation.

Medical Terminology Explainer (limited use)
Emotional Support Center
Hospital Survival Guides
Hard Conversation Prompts
Limited Family Update Generator
Community + Advocate Directory
Basic Resource Navigation
Daily Encouragement
Basic Symptom Tracking
Limited AI Questions for Doctors
Support Articles
Rare Disease Resource Directory
Basic Product Recommendations
Good News Mode
Sibling Support Resources

Limits: a set number of AI generations, exports, and symptom history storage per month.

Start free - no card required

7-day free trial

Caregiver Support

Premium

$14.99/mo

or $9.99/mo billed yearly

Reduce caregiver mental overload with deeper organization, smarter reminders, and unlimited AI guidance. Everything in Free, plus:

Care Coordinator Hub

Unlimited appointment tracking
Unlimited specialist tracking
Referral tracker
Medication tracker
Hospitalization timeline
Surgery planning tools

Symptom Intelligence

Advanced Symptom Tracker AI
AI pattern detection
Symptom trend graphs
Doctor export PDFs

Insurance & Navigation

Insurance Navigator tools
Prior authorization tracker
Insurance call log
Appeal prep assistance
Support Navigator by state
Financial Help Hub matching

AI Medical Binder

Advanced AI Medical Binder
Upload & summarize documents
Medical history organization
Searchable binder
Emergency snapshot exports
Care summaries for providers

Caregiver Support

Voice Dump Mode™
AI Next Step Assistant™
Daily burnout check-ins
AI emotional support guidance
Hospital packing lists
Travel mode

Smart AI Reminders

Referral follow-up nudges
Medication refill reminders
Appointment prep assistance
Insurance appeal deadline alerts
Unlimited AI questions
Medical Timeline AI™

Cancel anytime. No aggressive upsells, ever.

Smart AI reminders that quietly carry the load

“You haven't followed up on this referral.”

“Medication refill due soon.”

“Would you like help preparing for tomorrow's appointment?”

“Your insurance appeal deadline may be approaching.”

Coming later - Advocate+

A future tier, only if it earns your trust.

We will only add an advanced tier ($24–$39/mo) when it brings meaningful new value - never to gate basic support. Possible future features:

Live support groups
Advocate matching
Advanced care coordination
Collaborative family sharing
AI care insights
Premium templates & checklists
Direct nonprofit partnerships
Early access to new tools

Our promise

Forgotten Rare is mission-driven. A portion of proceeds supports rare disease families, hospital support efforts, advocacy initiatives, care packages, and rare disease organizations - in honor of Augyst. This platform should never feel like a business taking advantage of sick children. It is a deeply human support ecosystem built by someone who has lived it.

Forgotten Rare provides educational and emotional support only. This platform does not provide medical, legal, financial, insurance, or emergency advice. Always consult your child's medical team, insurance provider, attorney, social worker, or appropriate professional before making decisions.

Not HIPAA compliant. Forgotten Rare is a personal support tool, not a medical records system. Please do not enter information you would not be comfortable storing outside of a HIPAA-protected environment. Avoid posting full identifiers (full name + date of birth + medical record numbers) and any data you are required to keep within a HIPAA-covered system.