In honor of Augyst.

Forgotten Rare was created by Ashley Bechtol, inspired by her daughter, Augyst.

Ashley knows, from the inside, how overwhelming rare disease and medical complexity can feel. Families are often handed scattered resources during impossible moments - printed pamphlets, login portals, phone numbers on sticky notes - and asked to coordinate their child's entire world while they're trying to keep them alive.

Parents need clarity, organization, emotional survival tools, and someone in their corner. Forgotten Rare exists so families feel less alone, less lost, and a little more held.